Andrei Fagurel - English

It has been a while since I posted any news about Andrei. That is due to the fact that, thank God, he was constant, relatively stable, and we have been very busy caring for him because he becomes more and more active as he grows up.

He only had one bronchitis, about 3 weeks ago, but he managed to recover and, happily, there was no need for us to be stationed in the hospital, we gave him the treatment at home and it worked well.

But now I have some great news to give you. We are very happy and we want to share Andrei’s success with you. Since Friday, 4th of April, Andrei is without Oxygen tubes in his nose! Starting from the 2nd of April, we had seen while monitoring his oxygen saturation, that he is doing very well, so we had stopped giving him additional oxygen. On Friday he was still doing good, so we took our chances and took out the tubes. With God’s help, he still is at this moment without them. He manages to breathe by himself, without any supplementary oxygen!

If you tell this to a doctor, he or she would say it’s normal, that it was supposed to happen at some point, but for me it’s not easy to describe the feelings I had that day. First of all, I was euforic. Unsecure. Trustfull. Afraid. Hopefull. And so, all of these feelings led to the fact that, for about an hour after I took the tubes out, I trembled. Not of fear, but excitement. I knew nothing bad could happen, because I would have been able at any moment to put back the oxygen tubes and turn on the oxygen. Anyway, during the first 2 days after this, we kept him monitored all the time, to check his oxygen saturation. And still… my hands were shaking because I was happy. Sure, I knew this would have happened at some point in time, I had hoped it would, but I guess it had not occured to me that THAT was the moment.

I know it is a little difficult to understand all this loong story if you don’t go through something like this (and, honestly, I wish NOONE to have go through something like this) but maybe it helps a little if I also tell you that I had never seen him before without the oxygen tubes in his nose or some other form of breathing assistance, in his entire life, that is for 2 years and 30 days, for more that a few minutes, for instance when we were changing the tubes, and at those moments he was crying desperately.

It is very nice to look at that sweet face WITHOUT tubes, to be able to walk around the house with him without stepping on any tubes, it’s nice to know that he can play without getting himself all wrapped up in tubes, for me to be able to dress him up and also to undress him without going through the whole “ritual” of putting the clothes on or out of the tube. There are many things that come together with the oxygen dependency, other than the health problem itself.
And guess what was one of the first things that the little boy did: he put his little exploring finger in each of the nostrils!

It is possible that this is only a good period for Andrei and, when he catches a cold, and most probably after the next (and hopefully last) operation, that he might need the oxygen again. But the fact that he is stable now, without additional oxygen, gives us hope and confidence that he is getting better and that he has made great progress. And, after all, we agreed that we can allow ourselves to enjoy these moments, because we don’t know anyway what the future has “in store” for us, from Andrei’s point of view. We are living right now on the “seize the moment” philosophy. And, happily for Andrei, we are still living this happy “moment”.

I have also put on the website pictures that prove Andrei’s great success.

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