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May 30 2006
Still hungry
I’m hungry. They are giving me 50ml of milk hourly. I’m hungry. The pacifier is good, but I need milk. I’m hungry. I took a walk with the pram. and it’s nice. Strange but nice. I’m hungry…
Archive for May, 2006
May 29 2006
A bacteria
I had fever. Some bacteria came into me. I’m having some antibiotics and the situations seems to be under control. I’m hungry….
May 18 2006
I got rid of the big tube!
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The big tube has been replaced with the normal oxygen tube. We are breathing all right. First baby smile after the operation. I am hungry. |
May 16 2006
After the first operation
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MI am awake. What’s this tube in my nose? I will get it out with my right hand….
Andrei extubated by himself at 10 pm. The doctors decided not to intubate him again, but just keep the tube in his nose, in CPAP mode, in order to be able to monitor his breathing and help him a little. |
May 16 2006
The day of the first operation
The doctors decided that there will be four surgical interventions:
1. At the abdominal level
2. At the thoracic level
3. To apply Doctor Foker’s esophageal elongation method
4. To put together the esophageal ends
The operation was six hours long and the following activities were performed by Dr. Gitter:
- the right diaphragm muscle was brought lower, to make enough space for the right lung
- the lower esophageal end was closed
- a new standard gastrostomy has performed
What was discovered:
- the lower esophageal end is only half of a centimeter long
- the stomach was not in the right position
What decision has been taken
- Dr. Foker would like to try and apply his method, even if the lower esophageal end is so short
- It will be decided the date for Dr Foker’s visit
How is the patient?
- a little bit swollen
- the rhythm of his breath has been slowed down
May 15 2006
Daddy is here!!!
Daddy has arrived at three a clock. I slept in his arms all the day. it was all right…
May 14 2006
God is watching over me
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Our Christmas Flower has had new flowers since Andrei was born. God is with us. |
May 13 2006
I am gaining weight!
It?s a fact! I have started to gain some weight. Today I?ve reached the 6.9 lbs (3 kg). The doctors say that they can see that I?ve gotten a little chubbier.
May 12 2006
Planning the first operation in Germany
- To bring together the edges of the esophagus
- New gastrostomy
- Folds in the diaphragm (which tends to get in a higher position than allowed)
- Enlarge the pylori orifice
There would be two other interventions. One for the traction tension (most probably after the edges of the esophagus are healed) and one for the anastomosis. The estimated total cost in the most unfortunate case: 80.000 EURO.( approx.$102.000) ]>
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